Couldn't let this day,, 23rd of December pass without remembering our brave, happy little Grandaughter Naomi, who died on the 8th of March 2003, aged 9. This is her birthday. She would have been 16 today. I told part of her story in October. She suffered from Giant Axonal Neuropathy. The link below shows the faces of nine other sufferers of this incurable un-treatable condition. Naomi is in this video,, she is pictured in the middle of the top row. She is sadly remembered at the very end of the video.
http://www.youtube.com/watch?v=oQ-13lFKmQ8
Roughcaster.
http://www.youtube.com/watch?v=oQ-13lFKmQ8
Roughcaster.