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Hi Harry,
How's it going?
How's it going?
Uraemia - CKD/statins
- Thread starter Harry Bloomfield
- Start date
I've just replied to your other post, but....
Better in some ways, worse in others. Now I seem to have settled on the idea that it's the poisons remaining in my blood, making it's way to my brain, causing the episodes, I'm in much less of a panic, when I suffer the weird episodes. I am also getting used to them, and finding ways to take charge of them, ease myself out of them, so they tend to be shorter. What is worse, is how frequent the episodes occur, and I'm finding they are easy to trigger now, with the slightest amount of stress.
I saw my kidney consultant today, she seemed less than certain that the cause was due to my kidney failure. She did originally accept that the episodes were due to statins, based simply on my suggestion that was the cause - but I've not had any since September. She is now wanting my catheter installed, and on dialysis.
Another little update....
The very worrying waking up, in the middle of nightmare/dreams, and me believing them to have been real for several minutes, even once awake, seem to have thankfully ended. The weird episodes, where I lose all the strength in my muscles, where I simply cannot be comfortable sitting lying down or anything, where I feel too hot then cold, and are much more frequent, sometimes several times a day, but mostly shorter.
When I feel one coming on, and feeling too hot, I put the fan on full blast, until it turns into a shiver, then I feel much better, just cold.
I've had a call from the hospital PD team, confirming they have me on the list for the catheter installation op. I have also got a phone appointment, with someone who already on the PD system - arranged by the Kidney Foundation. You can't beat chatting with someone with personal experience.
The very worrying waking up, in the middle of nightmare/dreams, and me believing them to have been real for several minutes, even once awake, seem to have thankfully ended. The weird episodes, where I lose all the strength in my muscles, where I simply cannot be comfortable sitting lying down or anything, where I feel too hot then cold, and are much more frequent, sometimes several times a day, but mostly shorter.
When I feel one coming on, and feeling too hot, I put the fan on full blast, until it turns into a shiver, then I feel much better, just cold.
I've had a call from the hospital PD team, confirming they have me on the list for the catheter installation op. I have also got a phone appointment, with someone who already on the PD system - arranged by the Kidney Foundation. You can't beat chatting with someone with personal experience.
