If I may ask, how bad is your right-sided weakness? Does it affect your legs as well as arms and, if so, can you walk reasonably well? ... and have you had any speech problems?
Yes, my leg is affected. In fact, it is worse than the arm. It is shorter than the left leg and the Achilles was very tight, meaning I could not put my heel down. This meant that I could only walk on the toe on the right side. I had to have several operations as a kid to correct this.
i have no movement in my right toes. I can send a signal from my brain to my left toes to move them and that's fine, they move. But the right ones, nada.
The best I can do is bend the right foot at the ankle. And three of the right toes are screwed up (the others were straightened out in an op years ago).
I wear orthotic boots because my feet are completely different sizes and my gait is such that it has to be compensated for by specially shaped soles. Also, the right boot has a raise to compensate for the leg being 22mm shorter.
And lastly, I have an AFO (Ankle Foot Othosis) which helps minimise foot drop. In other words, it helps me to pick my foot up so it doesn't catch when (for example) climbing steps.
It's got a metal plate that fits under the insole of my boot, then a metal spine travels up the lower leg, attached to which is a shin pad that velcros to the calf.
The arm doesn't get such fancy accessories. I'm not sure there is such a thing, but I'm seeing Orthotics soon, so I will ask.
Basically with the arm, it sometimes jerks when I'm trying to use it, so a gentle movement becomes an excessive one and sometimes when I'm not intending to use it at all, the muscles twitch and the arm moves involuntarily.
Which is awkward when you're leaving a restaurant and you're walking past a table set with lots of wine glasses...
The restaurant were very kind about it, but I insisted on paying for the glasses because I felt really bad about it.
Since that incident, I put my right hand into my trouser pocket when I'm not using it.
Walking is slow and I have to stop frequently to rest. I use sticks.
I'm still recovering from my Trimalleolar Fracture which is hampering my walking even further. I am even slower than normal! But hopefully I will make a full recovery. Physio have told me it could take 18 months, but they have also said that some people who have an ankle break like mine never make a full recovery. However, I am determined to be optimistic.
But, all said and done, I don't feel hard done by in life. I have managed to get by and achieve what I wanted to in life and I realise there are people who are more hampered by their disabilities than I am, and I don't let myself forget that.
My Mum, bless her, beats herself up daily because she blames herself for my condition.
I try and tell her there was nothing she could have done, but sadly, I will never change that.
I was a face-up presentation at birth (that's the bit my Mum blames herself for). I got stuck in the birth canal and the doctors thought I was a goner. So they decided to leave me until the morning. They said to Mum that they would birth me in the morning and if I was still alive, all the better, but they weren't hopeful.
Meanwhile, a priest came along and administered the last rites.
I can't imagine how my poor Ma must have been feeling!
But anyway, come 04:30, I was born, and the rest is history.