Put on a brave face and be as normal as possible. It seems your fiance was doing the same, Tony.
Perhaps her family just needed someone to blame for their loss.
No, she really did not have any hassle from the blood problem, only from a slipped disc ( nurse ) and it was only discovered by chance from a routine blood test before the intended operation on the disc.
A couple of times she did become rather weak and had a platelet transfusion but most of the time she was completely normal and that was so odd knowing that she had an incureable desease.
Her family were very odd. She actually died when her sister was staying with her and the sister seemed to be keeping her away from the hospital until the last moment when she was virtually unconscious. I suspect they may have been some kind of religious sect which does not agree with transfusions!