As i was saying before splineless jumped in without looking - the story in
the Guardian today is a long read, so takes time to digest the implications of the position taken by opponents of decriminalisation and the promotion of medical cannabis: It tells the tale of Hannah Deacon and her young son, Alfie, who developed epilepsy at a young age. Doctors told the family he had a virus, but they couldn’t explain what the virus was. She demanded that Alfie be moved to the best children’s hospital in the country – Great Ormond Street in London. The doctors there gave him steroids, and after three and a half weeks of seizures, Alfie’s body finally stilled...
Alfie continued to suffer seizures every few months until, age five, he was diagnosed with a condition called PCDH19, a very rare form of epilepsy. The medication he was on was destroying his quality of life while also failing to stop his seizures. So, she decided to do her own research and found medical cannabis was available at private clinics
and on the NHS. However, British doctors were unwilling to listen to her questions on the possibility of him trying the 'alternative' treatment and, faced with the impossibility of getting Alfie access to cannabis treatment in the UK, Deacon began to look abroad.
So she took him to Rotterdam where Alfie began a new treatment programme with medical cannabis at the heart of it. At first, it seemed that all their efforts had been futile, as the treatment seemed to have no effect on Alfie’s condition. But the doctors kept slowly increasing the percentage of CBD and when they had reached 150ml of CBD, he went 17 days without having a single seizure.
By the time the family returned to the UK, less than a year later, Alfie had gone 40 days without a seizure. Medical cannabis had proved to be essential in stabilising Alfie’s condition.